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Published October 21, 2011, 05:06 PM

Devils Lake Baby Faces Uphill Battle With Rare Disease

DEVILS LAKE (WDAZ-TV) - Isaac Abramson suffers from a rare disease and in just thirty days he's battled seizures and a stroke and might need a complete heart and lung transplant.

DEVILS LAKE (WDAZ-TV) - A-one-month old baby is fighting for his life.

Isaac Abramson suffers from a rare disease and in just thirty days he's battled seizures and a stroke and might need a complete heart and lung transplant.

Isaac's mother Tasha St. John found out her little baby boy had heart problems when she was pregnant, but nothing could be done until he was born.

And now, as Isaac fights for his life, his family tries to do everything it can to keep him alive and free from suffering.

"Anybody that met him is lucky to have even met him. He is the cutest little boy in the world," Isaac's aunt Breanna St. John said.

St. John and Isaac's grandmother Lisa Aselson are losing hope for their newest family member and his battle against a rare disease.

Isaac's mother, Tasha St. John, left Devils Lake to see doctors at the University of Minnesota in Minneapolis when she was pregnant back in August.

"All they knew was he was missing a main part of his heart, a main artery," Aselson said.

Isaac was born on September 19 and was diagnosed with DiGeorge syndrome, a rare disease that nearly required him to have heart surgery at only five days old, but doctors decided he wasn't strong enough.

"He started having seizures a few days after that he had a stroke. We didn't know what was going on," St. John said.

Doctors kept Isaac in the hospital waiting for him to get stronger.

Earlier this week, doctors told the family they couldn't operate.

"They said they can't do the heart surgery now because of the vessels. One is completely closed and the other one has shrunk so much that it is smaller than the smallest needle in the world, so they couldn't even pick the vessel up to do anything," St. John said.

"It can be weeks to months. The only thing they told us is he won't live to see his first birthday," Asleson said.

And right now, As Lisa and Breanna wait and hope Isaac will get better, he remains in the Minneapolis hospital with his mother and father by his side.

"It's a shock because Isaac was doing so good over the weekend. He was doing great and in that short of time, in the last 24 hours it's been really bad," Asleson said.

On Friday, the family found out that there may be one last ray of hope. A doctor in California may be able to give Isaac a complete heart and lung transplant.

The doctor is talking with other doctors to make sure Isaac is well enough for the surgery and they will get back to the family next week.

In the meantime, you can help the family with the medical expenses.

There's a benefit set for November 11 at the Razor's Edge, or donations can be sent to Lotta's or Razor's Edge, attention Tasha St. John donation.

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