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Published April 19, 2013, 07:08 PM

Grand Forks teen to undergo surgery for rare disorder

Today was the last day of school for a very special Red River High School Student. 15-year-old Hannah Twedt will miss the rest of the year to under go a spinal surgery in the Twin Cities. Hannah was diagnosed with a rare genetic disorder that has required numerous surgeries.

By: David Schwab, WDAZ

Today was the last day of school for a very special Red River High School Student. 15-year-old Hannah Twedt will miss the rest of the year to under go a spinal surgery in the Twin Cities. Hannah was diagnosed with a rare genetic disorder that has required numerous surgeries.

Hannah Twedt is getting some help on an english assignment from some close friends.

Twedt: "I've known them for a long time. Since elementary school."

These are the same life long friends that have helped Hannah after countless surgeries she has under gone.

Hannah: "I've had so many of them I've gotten used to it."

At age nine Hannah was diagnosed with Saethre-Chotzens Syndrome, a rare genetic disorder characterized by skull, spinal and foot deformities. Last year doctors had to reshape Hannah's skull that had stopped growing.

Sue Twetd, Hannah's Mom: "By the time she was 14 and they found it. She was having severe symptoms and they was surprised she was still alive."

But when she comes home she always knows it's this set of friends helping her get back on her feet, sometimes literally.

Rachel Trenny: "After her foot surgery, me and Maddie would help pick her up."

Hannah: "Just being there, somebody to talk to and hang out with."

Sue: "After surgery on her feet they would take her out in the wheelchair out to do things away from home and that was really important."

Next Monday Hannah will undergo yet another surgery, this time on her spinal cord, one that will require a lot of bed rest to recover and that same set of friends who never fail to come around.

Zach Beczkalo: "If I was in her shoes I would want I would want someone for me there too."

Rachel: "She has always kind of been sister to me."

Hannah will have next week's surgery at Gillette Children's Hospital in the Twin Cities and may spend time recovering at the Ronald McDonald house nearby.

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